In the U.S., Lorenzo's Oil is currently only available to patients taking part in a clinical trial under the direction of Dr. Gerald Raymond of the Kennedy Krieger Institute. He can be reached at (800) 873-3377. Dr. Raymond has assumed the work of the late Dr. Hugo Moser. We are working with the FDA to obtain approval of Lorenzo's Oil as a drug, so that it can be widely available.
In the U.S., Lorenzo's Oil can only be obtained through prescription by Kennedy Krieger authorized physicians. A 500ml bottle costs approximately $56.00. Some insurance companies will provide coverage for the oil, but others do not because it is still considered an experimental drug by the FDA.
The oil is jointly manufactured by Croda International of Britain and SHS International (Scientific Hospital Supply.
If you live outside the United States, please see Lorenzo's Oil International