Contact Us Here:

first name
last name
phone
email
comments
 
 

The Myelin Project

1400 Wallace Blvd., Suite 258
Amarillo, TX 79106
(806) 356-4693

User Name:
Password:
Remember Login:
 
Forgot your password?
 
Or, to request a login for this site, click here.


 
 

Links List View

 
The top 50 links in our database are displayed below. Click on the "View Details" link to read the full description.
 

17 Record(s) Found. Displaying Page 1:
Panhandle Divsion National Multiple Sclerosis Society
Description: Panhandle Division National MS Society 6222 Canyon Drive Amarillo, TX 806 468-7500
The Stennis Foundation
Description: Raising awareness of the leukodystrophies, and fundraising for leukodystrophies research.
Lorenzo's Oil as a Teaching Tool
Description: Bradley J. Stith, Ph.D. Professor , Biology Department, University of Colorado at Denver
Hugo Moser Memorial
Description: Hugo Moser Memorial
MLD Foundation
Description: The premier family resource for metachromatic leukodystrophy information
Oliver's Army
Description: Raising money to cure adrenoleukodystrophy internaitonally
Northwood School Fund Raiser
Description: Students of Northwood School in Lake Placid raise funds for myelin disease research
ELA - European Leukodystrophy Association
Description: ELA - Association Européenne contre les Leucodystrophies 53 cours Léopold - BP 267 - 54005 NANCY CEDEX Tel.+33.3.83.30.93.34 - Fax +33.3.83.30.00.68
ALD Life
Description: ALD LIFE aims to help all affected by or interested in adrenoleukodystrophy and adrenoomyeloneuropathy and to educate you to become Aware, Learn and Discuss the many implications of this devastating disorder ALD LIFE PO Box 43642 London SE22 0XR Tel: 020 8473 7493
United Leukodystrophy Foundation
Description: ULF is dedicated to helping children and adults who have Leukodystrophy and their families The ULF is committed to the identification, treatment and cure of all leukodystrophies through programs of education, advocacy, research and service.
Hunter's Hope
Description: Hunter's Hope Foundation was formed to increase public awareness of leukodystrophies and krabbe diseases and to increase the likelihood of early detection and treatment. Their ultimate goal is to raise money to fund research efforts to identify new treatments, therapies, and a cure for Krabbe and other leukodystrophies
Stop ALD Foundation
Description: Stop ALD Foundation funds innovative new research to jump-start the process of developing new knowledge and new therapies. Also work to educate the medical profession and the public about ALD and to improve detection, diagnosis and treatment.
Pelizaeus-Merzbacher Disease Foundation
Description: Raise awareness and provide support for Pelizaeus-Merzbacher Disease. Educate people to reduce misdiagnosis of PMD. Fund scientific research in the hopes of finding a cure for PMD
Cure ALD Foundation
Description: Help find a cure for ALD. Informational web site for families and friends
National Multiple Sclerosis Society
Description: Multiple Sclerosis Myelin
National Institute of Neurological Disorders
Description: The mission of NINDS is to reduce the burden of neurological disease.
National Institute of Health Office of Rare Diseases
Description: Links to definitions, causes, treatments, and publications about rare diseases as wll as information on rare diseases research and research resources, patient support groups, and genetic testing laboratories and clinics

 
Contact Us | Site Map | RSS | OPML | Search This Site | Home
Schipul Web Design | Tendenci® Membership Management Software | Privacy