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Press Releases - Demyelinating Disease News for The Myelin Project

The top 50 press releases in our database are displayed below.

38 Record(s) Found. Displaying Page 1:

Sisters rally genetic researchers to tackle fatal brain disease
Release Date: 6-Nov-09 Author or Contact: Tom Avril Category: adrenoleukodsytrophy Subcategory: Gene Therapy
Tom Avril Philadelphia Inquirer (PA) - Nov. 06, 2009 Nov. 6--The busy scientist was about to leave a conference in Washington for his native Hungary when he was buttonholed by a persistent Main Line mother worried about her son's health. Amber Salzman told him he absolutely had to meet a researcher in France who was working on the deadly brain disease that could strike her son. He said, ...
Click to read Sisters rally genetic researchers to tackle fatal brain disease

Gene therapy technique slows brain disease
Release Date: 5-Nov-09 Author or Contact: Natasha Pinol Category: adrenoleukodsytrophy Subcategory: Gene Therapy
A strategy that combines gene therapy with blood stem cell therapy may be a useful tool for treating a fatal brain disease, French researchers have found. These findings appear in the 6 November 2009 issue of the journal Science, which is published by AAAS, the nonprofit science society. In a pilot study of two patients monitored for two years, an international team of researchers slowed the onset of the debilitating brain disease X-linked ...
Click to read Gene therapy technique slows brain disease

Scientists Halt Brain Disease with New Gene Therapy
Release Date: 5-Nov-09 Author or Contact: Elizabeth Fullerton Category: adrenoleukodsytrophy Subcategory: Gene Therapy
LONDON (Reuters) - Scientists have managed to halt a rare and fatal brain disease with an experimental gene therapy technique using a deactivated version of the AIDS virus, a study published on Thursday showed. The international team used a disabled form of human immunodeficiency virus (HIV) to deliver working genes to two boys with the brain disease X-linked adrenoleukodystrophy (ALD). Their success may help shape future treatment. Patrick ...
Click to read Scientists Halt Brain Disease with New Gene Therapy

Brain Disease Treated by Gene Therapy
Release Date: 5-Nov-09 Author or Contact: Lizzie Buchen Category: adrenoleukodsytrophy Subcategory: Gene Therapy
A treatment based on HIV finds first success in humans. The successful treatment of a brain disease marks a big step forward for gene therapy.Getty Researchers have halted a fatal brain disease by delivering a therapeutic gene to the stem cells that mature into blood cells. The gene was transferred using a virus derived from HIV, a technique that researchers have pursued for more than a decade but has not been successful in humans ...
Click to read Brain Disease Treated by Gene Therapy

Gene Therapy Advance Saves Two Boys From Rare Brain Disease
Release Date: 5-Nov-09 Author or Contact: Rob Waters Category: adrenoleukodsytrophy Subcategory: Gene Therapy
Nov. 5 (Bloomberg) -- Two seven-year-old boys with a fatal brain disease who couldn�t get bone marrow transplants were saved by scientists whose gene therapy technique may let doctors treat other incurable disorders. Doctors in Paris delivered the gene into the boys� bodies using HIV, the virus that causes AIDS. The virus, stripped of genetic material that makes it toxic, integrates permanently into the DNA of cells it enters, scientists ...
Click to read Gene Therapy Advance Saves Two Boys From Rare Brain Disease

Duke Studies New Approach in Fetal Transplants for Metabolic Disorders
Release Date: 15-Oct-09 Author or Contact: Joanne Kurtzburg Category: leukodystrophy research Subcategory: rare diseases
PhysOrg.com) -- Researchers say a new development in cord blood transplants for inherited metabolic disorders may be curative for some babies who are treated while still in the womb.
Click to read Duke Studies New Approach in Fetal Transplants for Metabolic Disorders

Pioneering HHS HRSA Grant Funds Establishment of First National Newborn Screening Clearinghouse
Release Date: 24-Sep-09 Author or Contact: Tiphan� Turpin Category: newborn screening Subcategory: Press Release
The nation�s first Newborn Screening Clearinghouse (NBSC), connecting millions of parents and healthcare providers with resources and information relevant to more than four million newborns screened annually, will be created through a $3.75 million cooperative agreement
Click to read Pioneering HHS HRSA Grant Funds Establishment of First National Newborn Screening Clearinghouse

Opexa Reports Additional Favorable Data with Tovaxin� for Multiple Sclerosis
Release Date: 24-Sep-09 Author or Contact: Shannon Inman Category: Multiple Sclerosis Subcategory: Press Release
Further analysis of TERMS Phase IIb data shows that 85% of patients treated with Tovaxin responded favorably, 16 % showing actual and sustained improvement in disability
Click to read Opexa Reports Additional Favorable Data with Tovaxin� for Multiple Sclerosis

Opexa Announces Stem Cell Agreement with Leading
Release Date: 10-Sep-09 Author or Contact: Neil Warma Category: Multiple Sclerosis Subcategory: Press Release
Opexa Announces Stem Cell Agreement with Leading Global Pharmaceutical Company THE WOODLANDS, Texas (August 7, 2009) � Opexa Therapeutics, Inc. (NASDAQ: OPXA), a company developing a novel T-cell immunotherapy for multiple sclerosis (MS), today announced that it has entered into an exclusive agreement with Novartis, one of the world�s largest pharmaceutical companies, for the further development of Opexa�s novel stem cell ...
Click to read Opexa Announces Stem Cell Agreement with Leading

American Brain Coalition Newsletter Highlights The Myelin Project
Release Date: 17-Jul-09 Author or Contact: Candace Root Category: PSA Subcategory: Brain Repair
The American Brain Coalition Highights The Myelin Project in the 2009 Summer E-Newsletter
Click to read American Brain Coalition Newsletter Highlights The Myelin Project

Genetic Alliance Issues Statement Applauding New NIH Therapeutics for Rare and Neglected Diseases Program
Release Date: 21-May-09 Author or Contact: Category: Rare and Orphan diseases Subcategory: Press Release
WASHINGTON � May 20, 2009 � Earlier today, the National Institutes of Health (NIH) announced the establishment of a new initiative called the Therapeutics for Rare and Neglected Diseases (TRND) Program, a federally mandated effort to encourage and speed the development of new drugs for rare and neglected diseases. Sharon Terry, president and chief executive officer of Genetic Alliance, a nonprofit health advocacy organization, issued the ...
Click to read Genetic Alliance Issues Statement Applauding New NIH Therapeutics for Rare and Neglected Diseases Program

NORTHWOOD SCHOOL STUDENTS RAISE MONEY FOR MYELIN DISEASE RESEARCH
Release Date: 14-May-09 Author or Contact: Candace Root Category: myelin disease reserach Subcategory: Press Release
Thank you and congratulations to Northwood School, Lake Placid, NY from The Myelin Project. We appreciate everything you do for The Myelin Project and supporting our cause.
Click to read NORTHWOOD SCHOOL STUDENTS RAISE MONEY FOR MYELIN DISEASE RESEARCH

MS NEWS - Ex-Salesman Uses Net to Inform, Persuade
Release Date: 7-May-09 Author or Contact: Stuart Schlossman Category: Multiple Sclerosis Subcategory: Press Release
Apathy perplexes Stuart Schlossman. The way he sees it, information about MS abounds
Click to read MS NEWS - Ex-Salesman Uses Net to Inform, Persuade

Augusto Odone New Investigator Award for AMN research
Release Date: 16-Apr-09 Author or Contact: Candace Root Category: AMN Subcategory: Press Release
TREATING THE OTHER FACE OF X-ALD It is a great pleasure to announce the launch of the Augusto Odone New Investigator Award, a project co-funded by The Myelin Project and Olivers Army http://www.oliversarmy.org Young scientists embarking on their research career are invited to submit their plans for a project aimed at finding treatments for adrenomyeloneuropathy (AMN). This debilitating disorder and X-linked adrenoleukodystrophy (X-ALD) ...
Click to read Augusto Odone New Investigator Award for AMN research

Hope for the Future: Embryonic Stem Cells
Release Date: 31-Mar-09 Author or Contact: Alison Kupferman Category: Stem Cell Research Subcategory: Press Release
The American Brain Coalition (ABC) is a non-profit organization that brings together people with disabling brain disorders, the families of those that are affected, and the professionals that research and treat diseases of the brain. The mission of the ABC is to reduce the burden of brain disorders, and advance the understanding of the brain.
Click to read Hope for the Future: Embryonic Stem Cells

Developing Treatments for Adrenomyeloneuropathy and Multiple Sclerosis
Release Date: 27-Mar-09 Author or Contact:
Nutra Pharma Corp., a biotechnology company focused on developing treatments for Adrenomyeloneuropathy (AMN), HIV and Multiple Sclerosis (MS), announced that its wholly-owned drug discovery subsidiary, ReceptoPharm, has introduced a line of specialized contract research services targeted at the early-stage life science market.
Click to read Developing Treatments for Adrenomyeloneuropathy and Multiple Sclerosis

New Research Award for AMN
Release Date: 18-Mar-09 Author or Contact: Candace Root Category: myelin disease reserach Subcategory: Adrenomyeloneuropathy
The Myelin Project announces the creation of the Augusto Odone Young Investigator Award. This Award is created to encourage promising young investigators to pursue a career in remyelination research. This Research Award will be co-funded by Oliver's Army and The Myelin Project. This first Award is aimed at research of adrenomyeloneuropathy (AMN). Adrenomyeloneuropathy (AMN) is a rare inherited metabolic disorder that is a ...
Click to read New Research Award for AMN

MYELIN PROJECT OF CANADA: UNA SERATA CONTRO LA SCLEROSI MULTIPLA
Release Date: 12-Mar-09 Author or Contact: Candace Root Category: PSA Subcategory: Myelin Disease Research
Marilena Carinci, insieme ad un gruppo di amiche e con la fattiva collaborazione dell'ufficio del Consigliere Regionale di Vaughan Gino Rosati, ha organizzato una serata a favore della ricerca sulla Sclerosi Multipla. Ospite della serata è stato Augusto Odone ed è stato proiettata una clip del film "L'olio di Lorenzo", basato sulla storia vera della ricerca disperata di una medicina per Lorenza deceduto lo scorso anno all'età ...
Click to read MYELIN PROJECT OF CANADA: UNA SERATA CONTRO LA SCLEROSI MULTIPLA

Myelin Board Member Chris Kaag Receives Alumni Achievement Award
Release Date: 17-Feb-09 Author or Contact: Heather Angstadt Category: Recent News Subcategory: Press Release
It gives me great pleasure to share with you today the exciting news that Penn State Berks alumnus Christopher Kaag ' 04 has been chosen by University Park as one of ten alumni to receive the 2009 Alumni Achievement Award. The Alumni Achievement Award recognizes alumni 35 years of age and younger for their extraordinary professional accomplishments. Recipients of the award are invited to return to the campus to share their expertise with ...
Click to read Myelin Board Member Chris Kaag Receives Alumni Achievement Award

Aldagen Receives Orphan Drug Designation for ALD-101
Release Date: 15-Jan-09 Author or Contact: Ed Field Category: adrenoleukodsytrophy Subcategory: Press Release
Aldagen Receives Orphan Drug Designation for ALD-101 ALD-101, a Novel Stem Cell Therapy, Is Currently in Phase 3 Trial DURHAM, NC -- (Marketwire) -- 10/30/08 -- Aldagen, Inc. today announced that it hasreceived orphan drug designation for ALD-101 from the U.S. Food and DrugAdministration (FDA). The designation was granted for the use of ALD-101to improve patient outcomes by decreasing time to platelet and neutrophilengraftment in patients ...
Click to read Aldagen Receives Orphan Drug Designation for ALD-101

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