The Myelin Project's 2011 Annual Conference

Since our initial founding in 1989, we have not, despite our valiant efforts, attained our definitive goal of remyelinating the human central nervous system.  This does not mean, however, that we have not made progress.  Far from it.  We have created a model that closes the gap between the lay person and scientist.  Although we have not reached our ultimate objective, we have developed all the prerequisites to reach this goal in the near future.  These results are possible through collaboration with our Scientific Advisory Board, the U.S. Myelin Project, The British Trust for The Myelin Project, The Myelin Projekt Deutschland and Il Progetto Mielina. 

We hosted a very productive meeting in Paris on October 13-15, 2011.   Those attending included Dr. Annik Baron-Van Evercorren (France), Dr. Wolfgang Bruck (Germany), Dr. Ian Duncan (USA), Dr. Robin Franklin (UK), Dr. Charles ffrench-Constant (UK), Dr. Jeff Kocsis (USA), Dr. Gianvito Martino (Italy), members of our Scientific Advisory Board.  Also in attendance were Dr. Patrick Aubourg, Dr. Nathalie Cartier-Lacave, Dr. Pascale Durbec, Dr. Said Ghandour, Dr. Celia Kassmann, Dr. Brahim Nait-Oumesmar,  Dr. Aurora Pujol, and Dr. Bruno Stankoff.  Members of the Myelin Project Board in attendance included Lionel Fynn, Francesco Odone and Duncan Richardson (The British Trust for The Myelin Project), Spencer Ryan (The Myelin Projekt Deutschland) and Diane Suchomel (the U.S. Myelin Project).  ALDLife, the European Leukodystrophy Association, Oliver’s Army, and Stop ALD were also represented.

The scientists presented the progress and activity in their labs and with their patients.  Brief reports from some of the scientists are included here in our Newsletter.  There was very high-quality collaboration among the attendees.  We look forward to our next meeting.