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Archive for July, 2016

Washington State Closer to ALD Newborn Screening

The Washington State Department of Health voted unanimously in favor of adding ALD to Washington state’s newborn screening program following an advisory committee meeting that took place in January of this year. The Ethan Zakes Foundation, created by Brad and Nancy Zakes in memory of their son, Ethan, has been spearheading the effort. Their annual skateboarding fundraiser, EZ

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“Women with ALD” Webinar By Dr. Marc Engelen

Dr. Marc Engelen, Pediatric Neurologist at the Academic Medical Center of Amsterdam, gave a webinar presentation last month titled, “Women with ALD.” This was the 11th installment of ALD Connect’s Webinar Series. To see more webinars from ALD Connect, click here. For more information, visit

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Minoryx Therapeutics initiates phase 1 clinical trial of MIN-102

Minoryx Therapeutics, a drug development company specialized in the discovery and development of new drugs for orphan diseases, announced the initiation of its first-in-man Phase 1 clinical trial for its lead compound MIN-102. MIN-102 is a differentiated PPAR gamma agonist with a superior profile for central nervous system related diseases.

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