Council member Brandon Todd of Washington DC introduced the “Newborn Screening Amendment Act of 2018,” which adds the test for Adrenoleukodystrophy, better known as ALD, to the list of newborn screenings that District hospitals must offer. ALD is a rare genetic brain disorder, affecting approximately one in every 18,000 people, which impairs nerve function and results in physical and mental deterioration.
“Requiring newborn screening for ALD is a commonsense way to save lives through early detection,” said Councilmember Todd. “In 2016, the Federal Government added ALD to their recommended list of screenings, and to-date six states have made this a requirement. The District must follow suit. We must do anything in our power to save families the pain of learning about this diagnosis after it is too late to medically intervene.”