Mark your calendars for April 25 – 28, 2019. Adrenal Insufficiency United’s 2019 conference will be held in Charlotte, NC at the Uptown Embassy Suites.
Registration starts at noon on Thursday. There will be informal networking opportunities before our first session at 1:30 p.m. The conference will end at noon on Sunday. Lunch is NOT included on Thursday or Sunday.
Transportation: The hotel does not offer transportation from the airport to the hotel. Attendees may use Lyft, Uber, or taxis. We will be looking into shuttle service and will provide additional information at a later date if that becomes possible.
Registration is $65 per adult. The conference hotel is $570 for three nights. (this cost reflects a discount by the hotel and subsidy from AIU)
Parking: $28 per day at the hotel. Less expensive parking may be available Uptown Parking
- Lunch on Friday and Saturday
- Entry to all sessions
- Activities for students in middle & high school
- There will be add on fees for child care or camp. (see more on our registration page coming soon)
- Our extended days will enable us to spread out the sessions and provide more opportunities for networking and socializing.
- On-site childcare for children 3 and up will be offered if there are at least 10 children who sign up. Cost for child care will $30 per child and will be offered only during sessions. You will not be charged unless we get 10 children signed up.
- Fundraising has begun and will continue until funds are raised to cover our cost.
- Travel stipends will be offered if fundraising goals are exceeded.
How you can help – Join a committee! We will need help with planning, fundraising, collaboration, social media and more.
Kyle Gillett PhD, LMFT
Kyle received his Ph.D. in Marriage and Family Therapy from Texas Tech University. As a licensed Marriage and Family Therapist, Kyle has worked in a variety of clinical settings over the last seventeen years. His career has focused on treating both boys and girls, with specialization in trauma, processing difficulties, eating disorders, depression, anxiety, OCD and difficult family systems. Kyle is a founder of the Solstice family of programs—located in Layton, UT and Asheville, NC. He has served in many roles including Primary Therapist, Clinical Director, Admissions Director, Program Director, and Executive Director. He is thrilled to have founded Equinox with a group of wonderful partners, and once again serve in the role of Executive Director.
Kyle will be joined by some of his colleagues enabling breakout sessions for various groups such as affected adults, parents, teens, and spouses/family members.
Mimi Kim, MD, MSc
Awards: The James H. Zumberge Research and Innovation Fund Individual Research Award (2015-2016); The Saban Research Institute Innovative Pilot Award (2012-2013). SC-CTSI KL2 Scholar (2011-2014); The Saban Research Institute & CHLA CRACDA Awardee (2009-2011); Women in Endocrinology Young Investigator Award (2009)
Larry Kurt Midyett MD
Dr. Midyett, attended the medical school at the University of Kansas and completed his residency in internal medicine and pediatrics and his fellowship in pediatric endocrinology.
Larry Midyett is a friendly and warm pediatric endocrinologist, pediatrician, internist, and primary care doctor caring for the Overland Park Pediatric Specialty Group. Dr. Midyett obtained his medical degree from the University of Kansas. He also completed his residencies in pediatrics and internal medicine at the same university and fellowship in pediatric endocrinology at Children’s Mercy Hospital.
Dr. Midyett is a part of Overland Park Pediatric Specialty Group. He is board certified by the American Board of Internal Medicine and specializes in pediatric endocrinology. His clinical interests include pediatric endocrine disorders, diabetes, intensive insulin therapy, and diabetes technology, helping pediatric patients transition to adult care, growth disorders, turner syndrome. He has treated and managed a diverse range of medical dysfunctions and is committed to providing the best comprehensive medical care available.
Eliza B. Geer, MD
Dr. Geer is an endocrinologist who specializes in caring for people with pituitary and neuroendocrine diseases. She is the Medical Director of Memorial Sloan Kettering’s Multidisciplinary Pituitary & Skull Base Tumor Center, located at Memorial Hospital in Manhattan. At this center, experts from many areas — including neurosurgery, head and neck surgery, endocrinology, radiation oncology, and medical oncology — work together to offer comprehensive care for people with pituitary and skull base tumors, in order to improve and advance the care of people with these conditions.
Her research interests focus on achieving a better understanding of how pituitary tumors develop and characterizing long-term outcomes in patients with Cushing’s disease. She has conducted a number of studies investigating body composition, adipose tissue regulation, and appetite in patients with Cushing’s disease, and is involved in clinical trials investigating new medical therapies for patients with Cushing’s and acromegaly.
She completed her internship and residency at the New York-Presbyterian Hospital/Columbia Medical Center, and fellowship in endocrinology and metabolism at the Icahn School of Medicine/Mount Sinai Medical Center. As part of her academic career, she spent 10 years as a faculty member at the Icahn School of Medicine and Mount Sinai Medical Center. She is currently an associate professor of medicine and an active member of the Endocrine Society, the Pituitary Society, and the American Association of Clinical Endocrinologists.
Craig Cooley, MD, MPH, EMT-P, FACEP, FAEMS
Dr. Cooley has worked in EMS for over 25 years and practiced emergency medicine for nearly 15 years. He is currently an Assistant Clinical Professor of Emergency Medicine and the Program Director for the EMS Fellowship Program in the Department of Emergency Medicine at UT Health San Antonio. He is also an Associate Medical Director for the San Antonio Fire Department and is active in disaster response as a Medical Director for the Emergency Medical Task Force of Texas and has responded to events throughout the state, including spending several days in and around Houston providing medical care during Hurricane Harvey. In addition, Dr. Cooley works through the global health program in his department and travels regularly to Vietnam and Nepal providing education and system with the development of EMS and Emergency Medicine in development to these growing systems.
Dr. Cooley grew up in the Texas Panhandle and graduated from Austin College followed by medical school at Texas Tech in Lubbock/El Paso. Dr. Cooley then completed his residency in Emergency Medicine, followed by a two-year fellowship in EMS medicine in Buffalo, NY. During his total of 10 years spent in Buffalo, he taught emergency medicine and EMS and served as the Medical Director for the Office of Public Health Emergency Preparedness for Erie County. Throughout his time in New York and continuing now in Texas, Dr. Cooley has worked with multiple EMS system, providing medical oversight, EMS education and protocol development.
Dr. Cooley was diagnosed with Congenital Adrenal Hyperplasia as a young child and brings a unique perspective as both an Emergency and EMS Physician as well as a patient with adrenal insufficiency. By living in both of these worlds, he will provide a medical insider’s look at how to navigate interactions with emergency providers as well as ways to coordinate with the different aspects of the EMS system to maximize care for patients with adrenal insufficiency.
Deanna has coached fitness enthusiasts, runners, swimmers and triathletes since 2005. She has a master’s degree in Health and Wellness Management with a research fellowship in Sports Nutrition. She is a USA Triathlon Level 1 Coach, Road Runners Club of America Certified Running Coach, Certified Functional Strength Coach, US Master’s Level 3 swim coach, and principal of Athletic Pursuits LLC.
Deanna helps adults with personalized coaching and training for general fitness and for special events like triathlons, marathons and anything her athletes dream up. She is a presenter at Harvard University Medical School for their endocrine clinics and homeostasis lectures. She also presents for clubs, hospitals and symposiums on the science and art of training and coaching. She is a regular contributor to USA Triathlon’s e-newsletter and blogs about training and living with autoimmune diseases.
Deanna puts enjoyment first with her personal athletic pursuits and always focuses on what she can do. She has participated in many triathlons, running races and ran two marathons before her Addison’s diagnosis in 2011. Since being diagnosed with Addison’s she has qualified for USA Triathlon’s Age Group Olympic Distance National Championships three times. She competed twice and took 9 minutes off her time on the course. She also completed the Boston Marathon in 2016.
Amber officially launched Clearly Alive Art in 2012 as her primary avenue for sharing her adventures of living with Adrenal Insufficiency, a diagnosis she officially received in 2005. In 2013, she went public with her extreme adverse reaction to a specific brand of generic hydrocortisone. Since its initial publishing, her recount of the poisoning from the inactive ingredient of Sodium Lauryl Sulfate has allowed hundreds of others to avoid the same fate. In 2014, she was able to successfully launch her Zazzle Storefront challenging people to “Ask Me About Life Saving Steroids.”
In 2015, her Theoretical Steroid Curve Plotter went live, with a second release for the cortisol pump in 2016. The Curve Plotter has been recognized worldwide as a useful tool empowering patients to improve their quality of life. It took over three years to develop, and she is incredibly humbled at the number of people it has helped.
Over the years, she has been able to share her mission to be Clearly Alive through a variety of avenues and platforms. These include being an invited guest speaker and a guest writer. Amber Nicole believes that we should do more than just live. We should all strive to be Clearly Alive.
Dianna Cannon has been practicing Social Security Disability Law for over 25 years. She is a sustaining member of the National Organization of Social Security Claimant’s Representatives and an adjunct professor at the S.J. Quinney College of Law where she teaches Disability Law. She has been elected by her colleagues to Utah’s Legal Elite, featured in Utah Business Magazine, and is a past president of the Women Lawyer’s of Utah. She is also licensed to practice law in Utah, Nevada, and California.
Over the past 27 years, Ms. Cannon has won thousands of disability cases at the hearing level. She has also won many cases at the Appeals Council and in Federal Court. Ms. Cannon states that while winning a client’s disability case is the ultimate goal, “helping people navigate Social Security’s paperwork, understanding medical issues, and obtaining important evidence is where Cannon Disability Law excels. ” She states, “We want our client’s to know we are on their side and we are behind them 100% during what can be the difficult process of winning benefits. We have the experience to do the job well and our success rate speaks for itself.”
Session 2: Qualifying for disability and then, for SSI, qualifying financially.