Events

Events

“Shoot for the Cure” Trap Shoot Fundraiser

Lincoln, CA

The 5th Annual Trap Shoot Fundraiser is hosted by Myelin Project board member and ALD mother Diane L...

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April 20, 2018 @ 12:00 pm

The 8th Global Orphan Drug Conference 2018

Oxen Hill, MD

What is World Orphan Drug Congress USA? World Orphan Drug Congress USA focusses on the most pressing...

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April 25, 2018 @ 8:00 am

Farlington 5K & Silent Auction – Hosted by “A Cure for Ellie”

Arlington, VA

“A Cure for Ellie” is excited to announce that registration for the 5th Annual Fairlingt...

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April 28, 2018 @ 12:00 am

N.O.R.D.’s 2018 Rare Impact Awards

Washington, DC

NORD’s 35th Anniversary Celebration presenting the 2018 Rare Impact Awards will be held on May 17,...

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May 17, 2018 @ 6:00 pm

“Kelly Tough” 12K Run 2018

Orchard Park, NY

Join Jim Kelly & his family for the 2018 Kelly Tough 12K! You can help Hunter’s Hope raise...

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May 18, 2018 @ 6:30 pm

United Leukodystrophy Foundation Annual Conference

Charlotte, NC

Family Conference: June 23 and June 24, 2018 Adult, Member $100 | Adult, Non-Member $150 | Teen (age...

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June 23, 2018 @ 8:00 am
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