Events

Events

N.O.R.D.’s 2018 Rare Impact Awards

Washington, DC

NORD’s 35th Anniversary Celebration presenting the 2018 Rare Impact Awards will be held on May 17,...

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May 17, 2018 @ 6:00 pm

“Kelly Tough” 12K Run 2018

Orchard Park, NY

Join Jim Kelly & his family for the 2018 Kelly Tough 12K! You can help Hunter’s Hope raise...

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May 18, 2018 @ 6:30 pm

United Leukodystrophy Foundation Annual Conference

Charlotte, NC

Family Conference: June 23 and June 24, 2018 Adult, Member $100 | Adult, Non-Member $150 | Teen (age...

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June 23, 2018 @ 8:00 am

World Leukodystrophy Alliance (WLA) Annual General Meeting 2018

Ellicottville, NY

The 2018 Annual General Meeting of the World Leukodystrophy Alliance (WLA) will take place at The ...

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July 17, 2018 @ 6:00 pm

Rare Diseases & Orphan Products Breakthrough Summit 2018

Washington, D.C.

The National Organization for Rare Disorders (NORD) will be hosting their annual “Rare Disease...

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October 15, 2018 @ 12:00 am

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