Quest for Life 
Rare Disease Research, Advocacy & Awareness
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Rare Disease

Research Advocacy 



We are a 501 (c) (3) non-profit aimed advancing research, education, & advocacy for myelin disease. 
 

Click here for more info about us.

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to add adrenoleukodystrophy (ALD)
 
to the Recommended Uniform Screening Panel
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~News~

October 7th, 2014 - Scotland

The Myelin Project's 2014 International Scientific Conference at Edinburgh Hilton Airport Hotel was a gathering of top myelin and leukodystrophy researchers in the world.  




September 25th, 2014 - Sacramento

California Governor Jerry Brown officially signed Assembly Bill 1559, sponsored by The Myelin Project and authored by Dr. Richard Pan, making CA the fourth state in the US to screen newborns for adrenoleukodystrophy (ALD). 

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