Funding Medical Research Since  1989
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Welcome to our website 


We are a certified 501(c)(3) international non-profit organization focusing on funding medical research and advocating for newborn screening of adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN).

Our Mission:

- Fund Medical Research for Myelin Repair
- Raise awareness of ALD & AMN
- Advocate for newborn screening of ALD
- Find a cure for demyelinating illnesses
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About Us


Augusto and Michaela Odone founded The Myelin Project in 1989 to find a cure for their son Lorenzo's rare terminal disease called ALD. The Odones' story was dramatized in the 1992 Universal Studios film "Lorenzo's Oil" starring Nick Nolte and Susan Sarandon. Click here for more info.

News: 

Sacramento - August 14th, 2014
The CA Senate Appropriations Committee unanimously passed bill AB 1559. Next stop is a Senate floor vote, and then it's off to the Governor ! WE NEED YOUR HELP to get a signature from Governor Brown. Click here for more information.

Assembly Bill 1559
  Newborn screening for ALD in CA.  
Click here for more information.
Send a Letter to Governor Brown
Sign the Petition in support of AB 1559

We can't wait to lose more children 
to adrenoleukodystrophy (ALD).

#SignAB1559 #StopALD