We are a 501(c)3 non-profit organization focused on improving the quality of life for those living with adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) through researchadvocacy and family support.  Learn more about us…

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Events

UPCOMING EVENT
March 1, 2020 at 12:00 am 17000 Elizabeth Lake Road Lake Hughes, CA

ALD Newborn Screening Family Retreat (Spring 2020)

Please join us (exact date TBD) for a relaxing weekend retreat intended specifically for families with ALD boys identified through Newborn Screening. The retreat will be held at the famous

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What People are Saying

My 11 year old son has ALD. He underwent a bone marrow transplant in 2014 and I had to quit my job to be with him. The Myelin Project’s family support program put food on our table and made sure our power and water stayed on.

Mollie H.

Client Served

Thank you for the teaching packet for ALD and Lorenzo’s Oil. I will be using this packet with my Associate Degree RN students in their Pediatric Nursing Course. Having the pathophysiological as well as the ethical component allows me to engage my students on many levels.

Ellen K.

PROFESSOR

I have shown Lorenzo’s Oil to my advanced chemistry students for years. It is a powerful way to teach chemistry, biology and chemistry. Thank you very much!

Todd H.

Teacher

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