We are a 501(c)3 non-profit organization focused on improving the quality of life for those living with adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) through researchadvocacy and family support.  Learn more about us…

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Events

UPCOMING EVENT
April 20, 2018 at 12:00 pm 5393 Waltz Road Lincoln, CA

“Shoot for the Cure” Trap Shoot Fundraiser

The 5th Annual Trap Shoot Fundraiser is hosted by Myelin Project board member and ALD mother Diane Love and Bill Zmrzel at the Coon Creek Trap & Skeet Club in

April 25, 2018 Oxen Hill, MD

The 8th Global Orphan Drug Conference 2018

May 17, 2018 Washington, DC

N.O.R.D.’s 2018 Rare Impact Awards

May 18, 2018 Orchard Park, NY

“Kelly Tough” 12K Run 2018

You can make a difference.

Our Partners

What People are Saying

My 11 year old son has ALD. He underwent a bone marrow transplant in 2014 and I had to quit my job to be with him. The Myelin Project’s family support program put food on our table and made sure our power and water stayed on.

Mollie H.

Client Served

Thank you for the teaching packet for ALD and Lorenzo’s Oil. I will be using this packet with my Associate Degree RN students in their Pediatric Nursing Course. Having the pathophysiological as well as the ethical component allows me to engage my students on many levels.

Ellen K.

PROFESSOR

I have shown Lorenzo’s Oil to my advanced chemistry students for years. It is a powerful way to teach chemistry, biology and chemistry. Thank you very much!

Todd H.

Teacher

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