We are a 501(c)3 non-profit organization focused on improving the quality of life for those living with adrenoleukodystrophy (ALD) and adrenomyeloneuropathy (AMN) through research, advocacy and family support. Learn more about us…
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Rare Diseases & Orphan Products Breakthrough Summit 2018
The National Organization for Rare Disorders (NORD) will be hosting their annual “Rare Diseases and Orphan Products Breakthrough Summit” from October 15th to the 16th, 2018 at the Marriot Wardman
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What People are Saying
My 11 year old son has ALD. He underwent a bone marrow transplant in 2014 and I had to quit my job to be with him. The Myelin Project’s family support program put food on our table and made sure our power and water stayed on.
Mollie H.
Client ServedThank you for the teaching packet for ALD and Lorenzo’s Oil. I will be using this packet with my Associate Degree RN students in their Pediatric Nursing Course. Having the pathophysiological as well as the ethical component allows me to engage my students on many levels.
Ellen K.
PROFESSORI have shown Lorenzo’s Oil to my advanced chemistry students for years. It is a powerful way to teach chemistry, biology and chemistry. Thank you very much!
Todd H.
Teacher