Tagged as: ALD

ALD added to Recommended Uniform Screening Panel

Washington, D.C. – February 16th, 2016 – Secretary of the Department of Health & Human Services, Sylvia Burwell, approved the addition of adrenoleukodystrophy (ALD) to the Recommended Uniform Screening Panel (RUSP), the federal list of genetic diseases recommended for state newborn screening programs. The addition of ALD to the RUSP may expedite

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The Myelin Project & Brian’s Hope Grant $50,000 to Dr. Raymond’s Lab

In partnership with Brian’s Hope Foundation, The Myelin Project granted $50,000 to Dr. Gerald Raymond‘s lab at the University of Minnesota. Raymond’ lab works in collaboration with the Inherited Metabolic and Storage Disease Bone Marrow Transplantation Program, the Center for Orphan Drug Research, the Center for Magnetic Resonance Research, and others,

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